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July 31, 2005

Popping Cancer Update: The world the way I see it.

The current schedule looks like this:

Tuesday - Visit with cancer doctor. Not much he can do until we confirm that pneumonia is gone.

Next Monday (the 8th) - CATscan to confirm that pneumonia is gone, if, you know, the pneumonia is gone.

16th - Appointment with pulmonologist, to confirm that pneumonia is gone and arrange to drain the fluid (or whatever it is) surrounding my left lung.

I have decided that the left lung is the one causing me the actual discomfort (inability to breathe, coughing, weakness). This is confirmed in my mind by the last x-ray which showed stuff all over that particular lung.

Both doctors want me to re-start chemotherapy as soon as the pneumonia in the right lung is gone.

The issue is that life is hell right now. I can't walk across a room or sit leaning back without losing my breath. I am weak as a kitten. Mrs. Popping Culture is now babysitting me all day every day, as if I was her 99-year-old grandfather just waiting to die.

What I think will happen is that I'll somehow scuffle out this next week and take the CATscan on the 8th, then call the pulmonologist for results the next day. If the pneumonia is gone, as it should be by then, I will ask him to arrange a procedure to clear up my left lung. If he declines and wants me to wait another full week until the 16th to visit him and THEN arrange the procedure, it is very very likely that my breathing will suddenly get worse in my own mind and I'll go to the emergency room. Once I'm in the hospital, complaining of being unable to breathe and looking as weak and awful as I do now, they'll fix my left lung.

Either way, I don't think I can survive chemotherapy with my left lung now completely down. I can't climb a flight of stairs and they want to poison me? C'mon.

So that is my plan.

Any comments, congratulations or rebuttals?

Posted by Dan at July 31, 2005 10:53 PM

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Sounds pretty good to me. How bout you?

Posted by: Ara Rubyan [TypeKey Profile Page] at August 1, 2005 12:05 AM

Um... 99.


Posted by: BigDan [TypeKey Profile Page] at August 1, 2005 09:40 AM

I have an alternate scenario to propose. Call your pulmonologist, and when he tells you the CAT scan confirms that the pneumonia is gone, express to him that you must immediately schedule the procedure to clear your left lung. It's hard to be firm when you feel like hell, so your wife may have to take the phone out of your hand and say "LOOK, BUSTER". (To the p., not you.) I think if you tell the p. that you have to start your chemo again ASAP, you've lost time with the pneumonia already, he ought to understand. If not, impress upon him that you really can't wait any longer for relief. Try to avoid going to the ER. You'll get exposed to all kinds of stuff that you really don't need to try to fight off right now. (But go if you have to.) I'll send stern thoughts your way on the 9th.

Posted by: Laura [TypeKey Profile Page] at August 1, 2005 01:41 PM

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